New Here? Start Here: Your Roadmap to Living Creatively with Fibro is the perfect place to begin.

Spoonie Lifestyle: Making it work

New Here? Start Here: Your Roadmap to Living Creatively with Fibro is the perfect place to begin.

Start Here

Cosy festive baking scene: wooden board with rolling pin, flour, cookie cutters and dough balls in front of a softly lit Christmas tree with bokeh lights and a glowing red candle.

Preparing for the Festive Season as a Spoonie

by Susan Pearson | 12 Nov 2020 | Spoonie Lifestyle

All my best thoughts and ideas to help you be as ready as possible to enjoy the festive season.

Iconic Houses of Parliament and Big Ben across the Thames – symbolising comprehensive UK advice for living with fibromyalgia.

Fibromyalgia in the UK: Comprehensive Advice

by Susan Pearson | 10 Sep 2020 | Spoonie Lifestyle

Comprehensive advice for anyone diagnosed with Fibromyalgia in the UK with a cheeky bit of politics thrown in for good measure.

White bedside commode chair with armrests, back support and wheels – a vital disability aid for spoonies with fibromyalgia or chronic illness to manage fatigue and limited mobility.

Disability Aids for spoonies

by Susan Pearson | 12 Sep 2019 | Spoonie Lifestyle

As a Spoonie you can make life so much better with the help of disability aids. Here are some of them I can’t live without. What else do you recommend?

A tortoise walking slowly, symbolising the importance of pacing for people living with fibromyalgia.

Pacing yourself is vital for Fibromyalgia

by Susan Pearson | 10 Jan 2019 | Spoonie Lifestyle

Pacing yourself when you have Fibromyalgia is one of the best tools you can adopt, to learn this means fighting your natural instincts, here is my advice!

Empty modern conference room with large window overlooking city skyline, ready for a meeting on managing attendance with chronic illness.

Attendance Management when Chronically Ill

by Susan Pearson | 19 Oct 2018 | Spoonie Lifestyle

Do you feel the widely used attendance management procedures are not fit for purpose when managing people with chronic illness? Read my thoughts about it!

Person in pyjamas colouring intricate mandala on bed with mug and pencils – gentle craft activity for fibromyalgia flare-up survival.

Flare-Up of Fibromyalgia: Survival for crafters

by Susan Pearson | 24 Aug 2018 | Spoonie Lifestyle

As a crafter a Fibromyalgia Flare-up is no fun, here are some of the things that I have done during mine to help me stay creative. It hasn’t all been bad!

Form with 'Introvert' and 'Sensitive' boxes ticked in blue ink, fountain pen nearby – reflecting INFJ traits in fibromyalgia experience.

An INFJ with Fibromyalgia

by Susan Pearson | 22 Jun 2018 | Spoonie Lifestyle

What is life like with a rare personality type? I am an INFJ and we are only 1% of the population. Read about being an INFJ with Fibromyalgia.

Long-handled reaching aid grabber with trigger handle and claw – an essential tool for spoonies with fibromyalgia to safely pick up items and manage housework without bending or straining.

Housework Assisted by a Reaching Aid

by Susan Pearson | 11 Apr 2018 | Spoonie Lifestyle

Returning to my household decluttering I am now tackling the big cupboard in the corridor, and as a spoonie, I couldn’t have even considered doing this without my trusty reaching Aid. If you have chronic pain or exhaustion, maybe you need one of these handy gadgets too?

Woman gently touching the arm of a man with crossed arms who looks away – capturing the tension and emotional distance often caused by a communication breakdown in relationships affected by fibromyalgia.

Dealing with a Communication Breakdown

by Susan Pearson | 4 Apr 2018 | Spoonie Lifestyle

Have you ever made big plans for everything you want to get done during holiday time and achieved none of it? That happened to me! Sometimes all it takes is a bit of change in focus and some better communication to stop a further organising breakdown from occurring.

Husband gently embracing his wife, offering comfort and understanding while living with fibromyalgia.

A Husband’s View of Fibromyalgia

by Michael Pearson | 2 Mar 2018 | Spoonie Lifestyle

I am someone with Fibromyalgia who is very lucky to have a spouse that totally gets it, therefore I encouraged him to write this post for those of you whose partners are not so understanding so here is a husband’s view of Fibromyalgia.