Spoonie Life
New Here? Start Here: Your Roadmap to Living Creatively with Fibro is the perfect place to begin.
Embrace the spoon theory mindset for a fulfilling life with limited energy. This section covers mindset shifts, emotions including bereavement, learning to pace yourself and everyday adaptations to help you thrive despite chronic illness.
Emotional Wellness and Mental Health
Emotionally it can be, and is, a lot to take in when you are adapting to living with a chronic illness. Here are some of the posts dealing with emotions and mental health.
Fibro and potential ME means Living in a void
The truth is, I often feel like I am living in a void. I understand that this seems a strange thing to say. It wasn’t always the case. In the first year or two it wasn’t too bad. There were bad days then pretty good ones. Later things changed. My Changing Situation It is worth […]
Bereavement One Year On
In just over a week it will be a year since my Dad died. I talked about it in the post Dealing with Loss. I don’t know about you, but I find as a spoonie my whole sense of time is altered. Blogging wise this has been a very sporadic year too, well in the […]
When Everything Collides
2023 has been a difficult year. I’m not sure how much of it can be put down to Fibromyalgia either. If I’m honest I don’t know if there will be anything in this post to help or inspire you. But as you are kind enough to read my posts I thought it was probably time […]
Dealing with loss
So, it has been a while since my last update, in a very fortunate fall when I talked about both of my parents landing in hospital. A week after this, two events happened on the same day. My Mum who seemed by far the most ill, was well enough to be discharged. A few hours […]
Flare-Up of Fibromyalgia: Survival for crafters
As a crafter a Fibromyalgia Flare-up is no fun, here are some of the things that I have done during mine to help me stay creative. It hasn’t all been bad!
An INFJ with Fibromyalgia
What is life like with a rare personality type? I am an INFJ and we are only 1% of the population. Read about being an INFJ with Fibromyalgia.
Communication, Relationships & Employment
I’m not going to lie, when you develop a chronic illness some of your relationships are likely to change, and not always for the better. On the other hand other people may well surprise you, or just be the wonderfully suportive person you knew they would be. These are some of the posts on the topic.
Adaptable Working When you have Fibromyalgia
Working when you have Fibromyalgia is important. One important lessons I can teach you from my experience is to broaden your concept of work.
Fibromyalgia in the UK: Comprehensive Advice
Comprehensive advice for anyone diagnosed with Fibromyalgia in the UK with a cheeky bit of politics thrown in for good measure.
Attendance Management when Chronically Ill
Do you feel the widely used attendance management procedures are not fit for purpose when managing people with chronic illness? Read my thoughts about it!
Dealing with a Communication Breakdown
Have you ever made big plans for everything you want to get done during holiday time and achieved none of it? That happened to me! Sometimes all it takes is a bit of change in focus and some better communication to stop a further organising breakdown from occurring.
A Husband's View of Fibromyalgia
I am someone with Fibromyalgia who is very lucky to have a spouse that totally gets it, therefore I encouraged him to write this post for those of you whose partners are not so understanding so here is a husband’s view of Fibromyalgia.
So I asked to be dismissed!
After living with Fibromyalgia for two years I have taken the step of asking my employers to dismiss me, read on for why and my plans now.
Pacing Yourself
One of the most important things to learn when you live with a chronic illness is the art of pacing yourself. Trust me, it is not as easy as it sounds. When you have a good day the urge to do as much as you can, can be incredibly strong. Here are some of the posts talking about my experience and suggestions.
The power of recovery time
If you live with a condition like Fibromyalgia you may well have three types of day. The worst ones when you have a symptom flare-up. The best ones where your symptoms are as insignificant as they ever are. Finally, in-between days. My early days of Fibro When I was first learning to live with Fibromyalgia […]
A Delay Can Save the Day
If you have read my blog for a while you will know I am a bit of a productivity nerd and there are times when I completely bring my A-game. But there are other times, like now when I am a long way away from this. It is true that I could push through and […]
Can Fibromyalgia be Cured?
Is your question Can Fibromyalgia be Cured? Here is the answer. You can also find lots more helpful Fibromyalgia information on this blog.
Pacing yourself is vital for Fibromyalgia
Pacing yourself when you have Fibromyalgia is one of the best tools you can adopt, to learn this means fighting your natural instincts, here is my advice!
Assistive Aids and Tools
When you live with a chronic illness or disability you often need to reply on aides. Here are some of the things that I have tried and found to work for me.
Disability Aids for spoonies
As a Spoonie you can make life so much better with the help of disability aids. Here are some of them I can’t live without. What else do you recommend?
Housework Assisted by a Reaching Aid
Returning to my household decluttering I am now tackling the big cupboard in the corridor, and as a spoonie, I couldn’t have even considered doing this without my trusty reaching Aid. If you have chronic pain or exhaustion, maybe you need one of these handy gadgets too?